As you all know, we have had a rough couple years. Attempting to become a mommy again has proved to be the hardest thing I’ve ever gone through with failure after failure, a crushing loss and what feels like bad news around every corner. But in it all, I have been so grateful and done my best to remember just how blessed I have already been to become a mommy to our son, Lincoln.
Last night I was reminded how fortunate we have been with our son in the last couple of years. While we have been facing failure, loss, doctor appointment after doctor appointment, surgeries and health concerns for me, Lincoln has been his healthy, happy self. He’s thriving at school, growing like a weed, and fills more and more of my heart every day. I love this little man more than words can say and when things aren’t going my way on the fertility front, I always know I still have him and I am still a mommy to the most incredible little boy.
But last night, a new fear entered my mind. Last night we found ourselves being turned away from the acute care and sent right over to the ER because of some swelling on Lincoln’s neck. Last night, the thoughts of “what if something happened to my strong little man” and memories of our last rotten 20 months flooded in my mind.
Last week Saturday, we purchased our neighbor’s full size trampoline and their grown children would no longer be using. Lincoln was PUMPED!!!! Now, I had my motherly concerns for injury on the trampoline, but at 5 years old, I didn’t figure Linc would be doing any crazy jumps or back flips and it would be another great source of exercise combined with fun for him.
Within the first few hours of it being in our backyard, he had fallen wrong on his neck and complained that it hurt. Mom was gone, dad was home, and dad made the right call to stop the jumping and go inside. Lincoln isn’t one to complain about not feeling well or when something hurts so when he does complain, we know he must really be feeling it.
He complained about his neck a few more times over the next couple of days, but for the most part he was a normal active 5-year-old boy, running all over the place. Thursday morning he started to complain before going to school so I finally got a chiropractor appointment made for him for after school.
At the Chiro’s office, Lincoln was pretty nervous. He’s never been to a chiro before and wasn’t quite sure what was going to happen to his sore neck. When he took off his jacket to lay on the table, the chiro and I both spotted the swelling on his neck at the same time. I kind of pulled a face and made a noise because of how bulged out it was, on the left side more predominately than the right. He looked like a body builder that spent too much time working on his neck! The most surprising part to me was how little he had been complaining and he was still moving and running around like normal. Immediately I was concerned that this was bigger than a sore neck. He was adjusted by the chiro on Thursday, followed by icing and a repeat visit on Friday morning.
Lincoln continued to complain sparingly, although we began to notice his energy seemed down and the swelling seemed to get worse. He still ran no fever and never mentioned anything hurting other than his neck. We started to see that his range of motion appeared limited. By Saturday early evening we decided it was time to take him in.

Neither Eric nor I vocalized the fears each of us were running through in our minds. In the last year we have heard of and known far too many children who have been touched by that ugly “C” word as well as other serious, complicated and rare diseases. Because of this and all the other tragedy that has been our lifestyle in the last several months, we were primed for our minds to go there with our son. As we sat in the waiting room, neither of us would utter that fear, but we each knew it was there. A part of me told myself I was over reacting, Lincoln was acting fine mostly, we should have just saved the ER charge and gone to see his PCP on Monday. But the mommy in me would spare no expense to find out what was ailing my baby.
The ER was packed when we got there and we knew it was going to be a long wait. Lincoln watched Netflix to pass the time and after about 30 minutes, my sister-in-law {who happens to be one of the best ER/Flight nurses Sanford has….maybe I’m biased!} stopped by. She wasn’t working that shift, but she came to the waiting area to check on us and Lincoln anyways. She immediately noticed the swelling and could see Lincoln wince when pressure applied to his sweet little neck. She checked over his back, spine and neck. Everything really seemed ok. Then she checked his throat….there wasn’t much for an airway! His tonsils looked inflamed and his throat {what could be seen} was red. She obviously could not tell me what was going on, tests would need to be ran, but it was evident his body was fighting something. She put my mind at ease, I began to think this is maybe unrelated to the fall on the trampoline and something bacterial and would be very treatable. We continued to wait and wait and wait.
About 40 minutes later we were finally being called back. Lincoln was tired and had tears in his days, saying that he just wanted to go home. He was bored and he was anxious about what they would be doing there after this long. He had a staph infection on his finger a couple of months ago that popped up out of nowhere. One night it hurt and the next he was getting his finger cut open because it was so puffy and swollen and full of infection. He was tough and braved the slice with no numbing, but that didn’t leave him with much trust in doctors, nurses and this type of facility. Before we left for the acute care, we had assured him they would not be cutting anything and no shots, maybe just X-rays.
The PA visited us several minutes later, got our story, and began checking him over. She too was concerned over the swelling around his neck. She looked in his mouth and agreed that was a lot of swelling, more like bulging, around the back of his throat, and a small airway. She confirmed no fever again and he still was not complaining of anything other than his neck. She swabbed down his throat and looked at us concerned. She hoped this was something infectious, but she really didn’t know at this point. She explained that they would need blood work and run the mono and strep tests, but likely a CT scan would be necessary of his neck with contrast. This would require an IV. My heart sank because I knew this meant a needle, which proved us to be liars in the eyes of our scared son.
The PA left the room and we explained to Lincoln what they needed to do. The alligator tears flowed immediately, the fear and the anxiety was through the roof. He wanted to go home, he did not want to be here and he did not want them to touch him. We did our best to explain the facts and then distract his mind with the movie that was playing. The nurses came back in and on queue the tears began flowing. I sat Lincoln on my lap as I spread out on the bed with him to try to calm him down. At first he refused his arm to the nurse, he wasn’t going to be brave. Reluctantly he eventually gave it over. The nurse explained to him what she would do, and that he needed to be brave. Through his tears I asked that he recite one of his memory verses with me. He did so with gritted teeth and hot, streaming tears.
“Be Strong and Courageous! Do not be afraid! For the Lord, my God, goes with you.” ~Deuteronomy 31:6


I tried to use this fear filled situation {for both he and I} as a teachable moment. To remind all of us that God is in control and He is bigger than this pain, this fear, this trouble. Whatever the outcome, He would go with us.
Soon the needle was in. I tried to shield Lincoln’s eyes and distract him, but he watched with disgust as they drew back the syringe and the blood filled the vile. He angrily questioned the nurse why she was doing this, what was she doing? He screamed that she was hurting him and then turned that anger back on us, his parents, chosen by God to protect him. Why were we allowing this??? I had no answers that would be satisfactory to him. I sat there holding my sweet boy, wishing they were doing this to me instead of him. The idea of all the children and parents who deal with this on a regular basis went through my head. I prayed that this would be our one and only visit to the ER with him, that this would not be our normal like it is for so many others. After the nurses left, he said to us through sobs, “I hate them!” meaning the nurses. We did our best to explain they were doing their job, that they were trying to find out why his neck hurts. But our 5-year-old didn’t care about that, he cared about the emotional scar they were leaving and in his book, they were the bad guys.
Fast forward {because this is getting long…it felt like an eternity!} and we were being taken back for the CT scan. Lincoln was of course anxious about this and fearful of what it would entail. We explained that they were going to take pictures and that this would not hurt. I was allowed to stay with him with my own protective vest on, and we talked through more tears and more fear while the imagines were being captured.
We were wheeled back to the room and told it would be about 90 minutes before the results were in from the scan. We buckled in for a long wait. Lincoln very quickly fell asleep. His poor body was fighting something and he was exhausted from the crying, the emotional fighting, the whole experience. As he slept, Eric and I watch our peaceful fighter, breathing in and out. The ugly thoughts creeped back in. Eric and I acknowledged that we were not going to verbalize the worst, but that we were both fearful of it. We joked about our family being frequent flyers at Sanford between myself and Lincoln, but then somberly thought of families who watch their children endure this stuff regularly. There is castle full of small soldiers on the same campus, fighting their battles. Their parents likely showing no weakness on the front lines, but silently praying all the while. I prayed that we would not be admitted and would soon be going home.

An eternity later, the PA came back in with a smile on her face. I breathed a sigh of relief to see her smile, knowing it was good news. Lincoln’s WBC was at 19,500, he had an obvious infection. The mono test was clear but strep was positive. The CT scans ruled out the worst of the worst and thankfully there was no abscess to drain. His lymph nodes were swollen but with treatment should go down. We were given a script for amoxicillin, some Motrin for Linc before we left, and instructions to follow-up with our PCP on this. She expressed the importance over and over for following up because we caught it now, but it could get worse and it could lead us right back there if we weren’t on top of things.
I thanked God for our results, prayed for quick healing for Lincoln and we were finally heading home.
Last night I was reminded how precious being mommy is to me. I would do anything for my son and to see him hurting and scared, killed me inside for those hours. I was reminded that while we continue to try to grow another little human, not to overlook that I am a mommy already. I was reminded how fortunate we are to have a 5-year-old who has experienced very little sickness and injury in his life. I was reminded to be strong and courageous, not afraid, for my God goes with us always, through the good and the bad.
Today I’m praying thanks again to our God for educated people able to detect this stuff and medicine to heal it. I’m praying healing for those who are sick, who may not have answers to why, and the parents of children who battle the unspeakable day in and day out. The Lord my God goes with you.